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Showing posts from June 26, 2022

23 Hours a Day

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 Whitney (8:20 am PST, Sunday 6/26/22) Krew got a new compression mask this week, with silicone in it. It is tight and he is not able to move much in it, even open his mouth to eat. The silicone really assists with flattening the scars and helps with itching. We have to smear cream all over the scars just to get the siliconed garments onto his scars. Since it is new we are easing our way into wearing it the prescribed 23 hours a day. He switches out with his red mask without the silicone to give him breaks. Making my kids wear the garments and their splints might be the biggest challenge right now. They beg to not have them on. Kyle and I know the importance of these tools and we continue to get them on him and Pepper as much as possible. One day they won’t have to wear them anymore, but for now bribery is used on the daily.

Proverbs 31:25

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Whitney (11:13 am PST, Saturday 6/25/22) Pepper was measured for compression garments this week. She will have a full body suit, broken up into pieces to allow easier bathroom breaks. We have seen a huge difference already with Krew’s, so we are anticipating great things. We love the gal who has done all the measurements for our whole family.