23 Hours a Day
Whitney (8:20 am PST, Sunday 6/26/22)
Krew got a new compression mask this week, with silicone in it. It is tight and he is not able to move much in it, even open his mouth to eat. The silicone really assists with flattening the scars and helps with itching. We have to smear cream all over the scars just to get the siliconed garments onto his scars.
Since it is new we are easing our way into wearing it the prescribed 23 hours a day. He switches out with his red mask without the silicone to give him breaks. Making my kids wear the garments and their splints might be the biggest challenge right now. They beg to not have them on. Kyle and I know the importance of these tools and we continue to get them on him and Pepper as much as possible. One day they won’t have to wear them anymore, but for now bribery is used on the daily.
Very handsome boy
ReplyDeleteYou are heroes
ReplyDeletePepper and Crew you are heroes to me and my family. Keep up the awesome work, we are praying for you and your family every day. Love and hugs are being sent your way. 💕🙏
ReplyDeleteThey have learned a very early life lesson that sometimes you have to do hard things. They are so precious and blessed with the very best parents and siblings. May God continue to heal on this journey.
ReplyDeleteHe’s a super hero!
ReplyDelete