Posts

Showing posts from November, 2022

Where Is My Supersuit

Image
Whitney (8:25pm EST, Thursday 11/10/2022) Compression garments are hand washed and hung to dry…this is part of our nightly routine. (Masks and leg compression missing from picture) We’ve been blessed to have 2 sets each, while one is drying, the other is being worn. For the most part the kids are adjusting well with the compression but it has been one of the hardest parts of adapting at home. It is claustrophobic and doesn’t allow for much movement. We opted for silicone lined, they help the most with hypertrophic scarring. The kids are supposed to wear them for 23 hours a day. The one hour is left over to bath, dry, and then re-apply lotion, and don a clean pair.  We have to put a pretty thick amount of lotion on every night. We go through a tub and a half of Cerave once a week.  Putting both Pepper and Krew’s compression on takes about an hour combined. It can be so exhausting, and we (both the person putting them on and the person wearing) are usually sweating by the end. We have no