Where Is My Supersuit
Whitney (8:25pm EST, Thursday 11/10/2022)
Compression garments are hand washed and hung to dry…this is part of our nightly routine. (Masks and leg compression missing from picture) We’ve been blessed to have 2 sets each, while one is drying, the other is being worn.
For the most part the kids are adjusting well with the compression but it has been one of the hardest parts of adapting at home. It is claustrophobic and doesn’t allow for much movement. We opted for silicone lined, they help the most with hypertrophic scarring. The kids are supposed to wear them for 23 hours a day. The one hour is left over to bath, dry, and then re-apply lotion, and don a clean pair.
We have to put a pretty thick amount of lotion on every night. We go through a tub and a half of Cerave once a week. Putting both Pepper and Krew’s compression on takes about an hour combined. It can be so exhausting, and we (both the person putting them on and the person wearing) are usually sweating by the end. We have noticed a real difference with their scars healing, they really work!
Cheering you on from afar, I am happy to read that you are still seeing slow and steady improvements. I am inspired by your ability (through your writing) to grieve and be full of gratitude at the same time. It's tough to hold space for the both/and like that, isn't it?
ReplyDeleteI really wish the best for you guys! I’ll keep praying
ReplyDeleteWhat a journey! They are blessed to have you as their mama and advocate.
ReplyDeleteIn 2009, our daughter was burned 60% 3rd degree. 140 days in ICU, numerous surgeries in hospital as well as after. Compression Garments, pressure face mask Godsends. They work so well. I have prayed many times for ur family. No one knows what it's like except those that journey on the same path. God be with you.
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